0:00
People assume that he's with me for my money
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or he's only with me because he feels bad for me. I don't have a jaw, and my tongue blocks my airway from their mouth
0:09
At first, negative comment got in really, really hard. I remember at first, you would be very emotional
0:17
What torture is this? How did this happen to a person? This right here is my airway
0:26
I don't have a jaw, and my tongue blocks my airway from their mouth. so having a treat helps it support me breathing a lot more better
0:33
I need to be careful how I clean it. I usually clean it like once a week
0:36
Tutu Coliseum is a genetic condition that I was born with. It's a bone feature where I was born without no jaw, no ears
0:45
I had a hearing aid because I don't have ears obviously. It's hard for me to chew and breathe on my own
0:52
There's certain things I can't do like swimming in water or chew proper food
0:57
I have to take care of what I eat or else I will choke. Hey, babe
1:03
Yeah. Want some coffee? Yes, please. My dating life. I never dated anybody like an actual relationship
1:12
I remember being so, so scared. We met in August. Back in 2022
1:20
2022, yeah. At first, I was there taking care of dating because I never knew what to expect
1:26
I've never dated anybody with this condition, which made me more interested about what the condition is
1:31
because I never knew what it was. But I wasn't nervous about it only because
1:36
how you look doesn't really bother me at all. You know, I've always told you this
1:41
You never judge a book by its cover until you actually read the book. I love you I love you too The relationship that I have now it makes me feel good I don feel like I have a vacation I don feel like I any different
1:57
I don't feel any less of a human. I don't feel any, just, I just feel good around him
2:01
And I never met a time like that, ever. You know, I'm a cameraman
2:08
I gotta get her recording every time she dancing because she's so good with it, you know what I'm saying
2:12
When did you first discover you had a talent for dancing? I was Ken and my dad noticed I was like moving my body around
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He's like, yeah, what are you doing? I said, oh, I like the music, you know
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My dad was smiling. He didn't know how to dance. I was like, okay
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Dancing makes me feel stress relieved. It helps me get my mind off of things
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Dancing is my way of letting things go and letting things out
2:45
of my sister, instead of, you know, screaming, punching walls. When I see Kayla dancing, how do I feel about that
2:52
I feel like she's living her best life. I started posting on TikTok on August of 2023
3:01
My boyfriend, actually, is the one that told me to, like, post, like
3:06
hey, you should show off your channel. Like, imagine how many people you would uplift with your condition
3:11
or, like, disability in general. And I was like, hmm, I don't know
3:16
Like I was kind of scared because of the hate. There's a lot of hate comics in the world right now
3:21
I was like, you know what? Screw it. I'll do it. Why not
3:24
I never thought my videos were going to be viral. It was unexpected and it's just crazy
3:29
This dance that it was going viral for a while. So I did the dance
3:33
It went viral overnight. It hit 11 million views Yeah Over the night everybody was commenting like girl you could get like I I think there was more shock that people with condition like me can do something like that
3:50
And I saw all the nice comments. I saw all the negative comments. I was like, okay
3:55
At first, negative comments got me really, really hard. I remember at first, you would be very emotional
4:02
And that's understandable. Who's not emotional? Everybody is. She would ask me then, why are they talking to me like this
4:08
What filter is this? They're assuming that my disability or my face is a filter
4:15
which I'm like, okay, you're trying to act slow or dumb. And I'm like, eh
4:25
some of y'all ain't smart. Or you're just trying to be funny, and it's not funny
4:29
It's stupid. The next one is a frog ogy. I'm like, okay, like, really
4:38
It's literally the same comments every single day or every time I post
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So it's nothing that bothers me anymore, at least. I feel like they got too much time on their hand where they feel probably miserable themselves
4:50
They have nothing to get really hurt, and if they do, they need help. We kind of just kind of like..
4:55
Strug it. Strug it, look at it like, okay, you want to be negative? Okay, is there anything better you can do with your life besides being negative
5:04
I sometimes look at it as a boost to, like, okay, since you want to be that negative
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I'm going to keep doing what I'm doing. You're boosting me as to be a better person. If you can make a negative to a positive, then what can break you
5:16
It's kind of like, hate me some more. You're making me happier than ever. Basically
5:21
Basically, yeah. People assume that he's with me for my money, or he's only with me because he deals bad for me
5:29
Not understanding that a lot of the times it not about looks When people say oh he just doing it for the money you don know that You don And it not true And it not true
5:40
I make my money, she makes her money, we stick together. As long as you can be truthful and stick by my side and be yourself, that's all I need
5:50
I'm with him because I feel safe with him. I feel safe, I feel myself
5:56
I don't have to pretend to be somebody that I'm not as well. Looking back, my confidence was a zero
6:03
Now it's more like, I would say like an eight. I'm not going to say a ten because I'm not going to say I'm perfect
6:09
I'm not. I'm a human being. I had emotions. I have feelings. I have bad days, which is normal
6:13
Everyone has bad days. I feel so bad with people not feeling confident about themselves
6:19
You know, people always say, like, hey, your confidence helps you. You're so confident
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I wish I had that. I wish I had that. And I always tell them, you need to build it
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What I hope what people learn from this story is never give up on yourself
6:32
Never give up on your passion, your dreams, your goals, your life goals
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My wishes and my goals for the future are just keep going. Push hard
6:41
I will never stop doing what I love to do. And it's just me being me, meeting myself, surrounded by love, positivity
6:49
You can't change the past, but you can change the future. What's going to come after
6:54
What's going to come after you next? I have a message for the people that are trying to bring me down
7:00
You can keep trying. I'm in my own place. I'm in my life. Doing what I gotta do
7:05
You're worried about what I do. You're worried about what I do? Keep watching me