P249930YT BD AlbinismComp Youtube H264

We have nine-year-old twins

My daughter, Shariq, she has albinism, but my son, Tariq, he doesn't. They called me an inside-out Oreo

It used to affect my confidence. Lise and Sammy are both born with albinism

They're one in 17,000. We understand each other more than other best friends probably would

We are identical twins born with albinism. And the chances of that is one in two million

People accused our mother of cheating because our skin didn't look like hers

We've always been together and even if we don't have friends, we know we can always

count on each other. Because I know they are different, so we have to support them with love

When you're growing up, everyone was trying to fit in, and naturally I couldn't fit in

Even if I wanted to try to fit in, it just wouldn't work like that. I was abandoned because of my albinism

It was hard for me to have albinism sometimes because you get, unfortunately, excluded

Oh, the strawberry's egg. It's actually so much fun when you can go through that hole

Oh, no. Oh, no. Oh, no. People sometimes don't believe we are twins

People always, like, come up to us and be like, oh, my God, you guys are so cute. I love your outfits

And then we say, thank you. And then we'd be like, we're twins

And then they'd be like, no. And then we'd be like, yes. I'm looking at my days, my child

I'm like, dog. It's different. Like, it's totally different. He's more funnier than me

And I'm just kind of calm, I don't know. I sometimes annoy people all the time, but it's okay

We have nine-year-old twins and they were born different. My daughter, Shariq, she has albinism

but my son, Tariq, he doesn't. And that was a shocker for us once they were born

Albinism means you just have no pigment in your hair, your skin, or your eyes

So you're very sensitive to the sun. Very rare for having a child with albinism

I believe is one out of 75. When the twins were born, I was in elementary school

And basically, like, I was so excited because I wanted one to come out looking like me

I didn't care who it was, just somebody come out looking like me

I was like, oh my gosh, she looks just like me. I started crying

That was the best moment ever, man. Awesome. My daughter, Shateria, she had bullying

People, you know, call her names. I think she had somebody spit at her before. It was really hard for her

I was like, Mommy, I don't understand why these kids, like, are treating me like this

because at home I got the love. But it's like when I went outside of home, it was a whole different environment

Of course we were worried about Sharif, you know. Being bullied and the same things that Shatiria went through

What the world, what she was facing outside the doors of our house. We were worried about that

My sister helped me with my albinism because she comforted me and she helped me

Because I used to be kind of shy, but now I just like to make friends a lot

We're getting ready to go to Houston, Texas. The twins and Sheteria have been

chosen to be a part of the Skin I'm In 2019 exhibition and gala by celebrity

photographer Pharrell Phelps. We haven't seen the photos so we're really excited

to see what he's done with them. I'm super excited to go to the Skin I'm In

exhibition. I feel like it's gonna be awesome. Amazing to be in a room with

everybody that shares something in common. I haven't got to see the pictures

yet so I can't wait to see them. I'm super stoked. When I look in the mirror I see

somebody who has came a long way and my eyebrows are blonde, my eyelashes are

blonde, everything is blonde and I used to hate that. But now I look in the mirror Yee-haw

Everybody's getting to see their pictures for the first time. It's just going to be amazing. I'm really happy to be here. What about you guys

I feel so excited and happy. I always want to do things that make a difference and impact the world

People are prejudiced against each other simply based on skin, melanin, something that God

created us to walk the earth in

The very same thing that they were ridiculed about, ostracized about, they're being highlighted

You and I can't be a part of this show because we don't have differences

Well, I feel amazing right now. Today was great. Oh, my God, I met so many cool people

We talked. Like, it felt like we were a family. Seeing my pictures, man, I almost cried

I almost cried, but they look super amazing. I'm just really happy I got to be a part of this

and it's just so cool. When you talk about acceptance and we talk about the Skin I'm In project

I want everybody to be accepted, you know, for their uniqueness and not necessarily the cookie cutter type

but uniquely beautiful people. I want the modeling industry to change. I want the commercial industry to change

You learn more when you can see the variations of people that exist in the world

I'm very proud of them accepting who they are. that's what I'm most proud of

I felt really happy and excited. I never thought that I'd be apart in something like this

I just thought I was just a regular person. Yeah, we're just normal

I have oculocutanus albinism type 1. Even on a day like today, I always have to have some cream on

and have to stay covered up. I've been diagnosed with nystagmus, which is the wobbling of the eyes

which means, say for you, everything's just still. But for me say if I emotional upset frustrated or just tired my nystagmus could kick in and it could really start wobbling Also my eyesight there not really any depth perception there

and that's why I have to use my white cane. It helps me to know how many steps to actually go down

without falling down any of them. I initially saw Kim Lee appealing for a forever home on GMTV

We eventually adopted her after a process with social services just before her third birthday

These are the pictures used by GMTV when you were appealing for a forever home in National Adoption Week

You were about nine months old then. So what was it that made you want to adopt me

We'd already got Jonathan that had already got albinism. So we'd got a good foundation of knowledge of what albinism meant and how it would affect you

So, we thought, why not? I have three children with albinism. Jonathan is 17 and Harriet is 11

They both have oculocutane as type 2, which means they have some pigmentation

Oh, there's a zombie. There we go. I'd say that our relationship is really strong between us all

I think that Kimberley's all right, to be honest. Sure, we have our moments, but then again, all siblings do, to be honest

Kimberley's condition does affect her a lot more than she will admit to

As a teenager, her looks are completely different. Her body shape is very different, which she's struggled with quite a lot

When people say that I'm not black, it kind of makes me just feel a bit..

I don't know what the word to really say, because I know I am black

It's just the lack of education, really. They called me an inside-out Oreo, which first didn't make sense

That was what black people get called a lot of the time when they are black but act white

And that's technically what the person was trying to say to me, that I'm white but try to act black

I do look Caucasian, like white. But to be fair, most people don't really know what to say

because of how different I look as well. I felt insecure using my cane

It's still just that thing, like, afraid of judgement kind of thing

I think for a child, a teenager, particularly going out, carrying a white cane is another example of her standing out

and looking different. It used to affect my confidence, but now I'm not bothered

about just going out and having to use my cane. I was, like, looking at all these pictures of tiny German shepherds

I don't really notice Kim being different because she's one of us

so I don't have the need to say if she's different or not

My modeling started last year in August. I always wanted to do it

The fact that I have albinism and that I can empower people as well

like being an ambassador. I want to raise awareness for albinism, mainly because there's a lot of people who have the condition

they're just like not comfortable within themselves. I feel proud of her, she's just trying to get out there

and she's just trying to be like, this is me, this is who I am, I'm not going to change who I am for people and everything

With sports it is hard, but it hasn't really stopped me because there are a lot of, say, equipment you can get nowadays

that is accessible and it has been really adaptive. I think it's really important for everyone just to accept themselves

I kind of want albinism to become more mainstream. So seeing albinism being portrayed in a good light as well

like through the media. I want this film to teach people that despite my disability

I've accomplished something great in my life. I'm Sammy and I'm 13

I'm Lucy. I'm 14. Almost 15. Luce and Sammy are both born with albinism

So albinism is a genetic condition that you're born with. There's two types

You can either affect the pigment in just your eyes or in your skin, hair and your eyes

And the form of albinism I have is called oculocutaneous albinism, which means that it affects my skin, my hair and my eyes

And it also makes us very light sensitive and our skin is very sensitive to the sun

My dad. Oh, hello. It's not your dad. It's your grandfather. Oh

When we had Luce and she was born, she had a shock of white hair

She was like a little grandma. She was just gorgeous. So when she was probably around two months old, we went off to the ophthalmologist

And he looked into her eyes and said, there's no colour. she has probably the most severe form of albinism

We found out when Sammy was about six weeks old, I thought, hmm, something's wrong with her eyes

And the optometrist said she's got oculocutaneous albinism. And my husband and I looked at each other and sort of went

oh, I wonder what that is. And then she said, she's albino. Having albinism, some of the negatives are the vision

Like, it's hard to see things and I find it hard to, like, I look at my friends' Instagram photos and they've got all their, like, their tan and their dark hair and, like, it's hard to know they'll never look like that

But then you look at the positives and it's like, I look different, but that can be a good thing

I love the colour of our hair. It's so unique and different. It's just so bright and so vibrant

One in 70 people carry the G. Then you have a one in four chance of having a baby with albinism

So they're one in 17,000 people with albinism. So it's reasonably rare

Find someone in close location to you that has albinism and being similar age

It's been great for girls. To have Sammy as a close friend

it means a lot to me it's really funny to be able to talk to Sammy

and relate to things that to us might be really hilarious because I know it's just really obvious

it's because of our vision I'd be like oh I fell down the stairs the other day they'd be like are you okay

but when I'm with Sammy she'll just laugh at me and I'm like yeah I know it's funny They were so involved in the internet and we always thought as parents that's their area

that's the area that they possibly may get into. Yeah because Lucy's always watched the YouTubers and everything

I'm like Lucy, instead of watching them why don't you do something like that? The first photos we took were almost my favourite

I thought wow this is fun you know let's just stick a couple up and see what happens. And it's just kind of grown from there

Instagram it a really good time to go out and try on all these clothes and say well I like that And then you like wait let take a picture of that and post it on our Instagram

It makes us really happy that we can raise awareness for our condition

I was really surprised at first I had no Instagram. And when she first showed me how people were ticking over and they were getting more followers

I was really surprised. We understand each other more than a lot of other best friends probably would

Sometimes it just feels like we're kind of the same person in a way because we're so

similar in what we've been through. We're not perfect. We have our ups and downs and we argue and debate over everything

Yeah, we're different people. But at the end of the day, that doesn't matter

because we're still friends. Always do that one. Yeah, it's my favourite one, Rachel

It just doesn't really feel like we're best friends. It feels like we're kind of sisters or, you know

it feels like we're really, really connected in a good, special bond

Wait, where's the bacon? Are you going to do the rest of the work Get the pen

I gotta get the pen. Ooh. That's horrible for down. I'm so sorry

Okay, what else? Alpinism is the lack of pigment or melanin in your eyes, skin, or hair

Our skin is super sensitive. We try to wear as much protective clothing as we can

That's not true. But we're supposed to. Who wants to cover up

Right, right. As a 25-year-old, who doesn't wanna show a little skin

Just a little bit. We are considered visually impaired. To read things or to view things like pictures

or something that has a lot of detail, we would have to get close up to look at it

As far as like the numbers on the stove, we have to lean and look

And as you can see, Kayla made a mark at the 350

I mean, we get by pretty good. We? I get us by pretty good

I think it really helped us both out when we were growing up that we were in the same situation

and dealing with the same things. If one of us was having a bad day

we'd tell each other like, I know what you're going through and I got through it

so you can get through it too. Exactly. I don't have to explain anything to her

when I do something that requires me to look at things a little closer or do things differently

Oh, is that mom? I think it is. Hi, mom. How are you, honey

Hi, Mom. Our mom didn't know that we had albinism until after we were born

We didn't look like our family, so some people have questions. They thought our mother cheated on my father

The first assumption that people made when Megan and Kay were born was they were of another race

they were not his kids, you know, of course. The fact that our mother had to deal with that judgment when we were born

She had to learn like on the spot, like right then and there

You know, doctors came into the room and, you know, they explained everything to me. More education I got on it

And it's like now I got like this big responsibility. And I didn't know if I was going to be able to do it

Were you concerned about how they might be treated at school? I was very concerned

Well, kids can be mean. They used to call us white or we were adopted

Our parents weren't our parents. or someone might copy how we do things like reading

We have to hold it closer sometimes because of our vision so they would make fun of that

One of the things we started doing so I could try to encourage them is like when they would leave out in the morning

like, I'm strong, I'm smart. Mom imparting into us that we are all so beautiful

and we're all so strong and we can do anything that we set our minds to, I feel like kept us afloat many days

We have a little something planned today. But we're going to wait a little bit until you let it be a surprise

Yeah. I like surprises, but it sounds suspicious. Oh my God. Okay

I started posting on TikTok a few months ago. Seriously, we thought this would be a good way to have fun and maybe educate people on our condition

The responses to our content, most of it, like 98% of it, has been super positive

But there's always that 2% where people leave mean comments. Oh, one of the comments asked if we had eyeballs

That was fun. I giggled so hard. That was fun. It's because of our light sensitivity

That's all. We have to squint sometimes. I promise we have eyeballs. They're there, people

98% of those people just want to feel educated and just want to know a little bit about ourselves

Our future just looks like us educating in a fun way. I have absolutely no idea what I want to wear, so let's get started

Okay. Today, I'm going on a blind date, and I'm curious to see how he reacts to my condition

And my condition kind of has had some hand in how I date, especially with meeting new people

You have to tell about your albinism and to go into new places where you have to figure out and find where everything is

Sometimes with me, I just cut out the middleman and I don't go out at all

Let me see. OK, bright orange. What do you think? OK, yes. That against your skin would be so pretty

I just don't go on a lot of dates because I have anxiety about what they're gonna say about me

Ta-da! Michaela is going on a date! Okay Michaela! So that's what the surprise was

Something is going on a date. Mom please! Sometimes out in public it can feel like we're in a zoo and people were just coming by to stare at us

To stare at us. For the most part we ignore them and since we're visually impaired we don't see them

Since we're visually impaired we don't see them staring at us anyway. For the most part. It is kind of hard dating because I do have a disability with my visual

impairment. I just I feel anxious. Hello. How you doing? I'm Kimar. I'm Mikayla. Hi Mikayla. Nice to meet you

Nice to meet you too. How are you feeling today meeting me for the first time? I mean

I would say I'm more excited and nervous. What do you like to do? A lot of things, but I'm more into like social events like outdoors, movies, stuff like that

How about you? Well, I stay inside. Your homebody. She's so cute. This is a little different experience for me, but hey, we're here, right

So I'm intrigued to learn more. To have a partner who understands me

would mean so much to me. Often I do get misunderstood for my albinism So could you tell that I have albinism Have you ever been or came across anybody with albinism This is actually the first time I hearing about it

You wanna share with me a little bit more? I don't know if you can tell, but I am black

But I have zero melanin. I'm questioned a lot by others, but I feel like when I grew up

and started to become like my own person, it didn't bother me as much

Well I think you're beautiful, I mean you still are. And getting to know you better now

learning more about some of the differences, I'm more intrigued to get to know you better

So, I have something to do. Well hello! Nice to meet you, I'm Kimar

What's your name? I'm Megan. Oh hey Megan, nice. Nice to meet you too

This is my mother. Oh hey mother! Two beautiful daughters, see where it comes from mom

That was great man, she's beautiful. So I'm looking forward to learn more about her and see what we get out of this experience

I want to show people with albinism that like it's possible and they will get through it

We did have a lot in common. He had a nice smile. I really like that

He seemed really nice. I think we could be good friends. Really proud of them for going out to do something like this because they're, I feel like introverts

So for them stepping out to be able to do something like this, but it's great

I love to see it. We're out here, we're loud, and we're proud, and we don't care who knows

And that's how we live our lives, and I think it's important to show that. We fight so much and argue, but then we're like best friends

And since we were little, we've always been together. And even if we don't have friends, we know we can always count on each other

So my name is Rosemary and I'm 24 years old. My name is Christina and I'm 24 years old

Oh my god. So currently we're studying to get our master's in global fashion enterprise

Same here. We're both studying the same thing. We both love fashion

Yes. I'm always wearing color. This is a new piece I just added into my closet

it's like a it's a dress a ship dress and it has so many flowers it's so bright

I wore it with this and some wine stockings and a pair of Chelsea boots

that's this color right here yeah I have the same thing and actually paired mine

is different because I didn't pair with the sweater I just wear it alone with camo boots so yeah when she buys something I'm like oh my god I love that

the next day I go by it I'm like I want that same thing because we love it so

it just makes us happy. I would say that at a really young age, we saw that we love fashion

We would get paper and make our own little sketchbook and draw outfits. I love dealing

with clothing and accessories and dressing people and seeing how a clothes would fit

on someone. Yesterday, my brother sent us different images. He was like, so which one

do you like oh i like this one number one number two i like that red coat so yeah he always comes

to us for um both advices and questions i want to like finally he dressed nice like i actually

asked him like oh this doesn't look good just like presentable when i go outside

we got here right being sisters and being best friends and having the same interest makes our

them easier because we really just like talk to each other. It's kind of difficult when

you're growing up with it because at one point you don't understand what it is but then you

get to that stage and you're like oh my god I'm different from other people. The younger brother Julius who is also a bad news. They face a lot of challenges

It's a lot of challenges. I love my children because I know they are different

So we have to support them with love. When they are younger, first of all, they love dressing, which they still grew up with

The passion of dressing, they still love it. A lot of challenges when I was going to high school, especially in the society that we live

Having autism in school, yes, we were teased, yes. I would say college was the turning point for us

It gave us so much more confidence in a whole other world. When I first met them on campus, one thing was for certain, they were very shy when it

came to meeting new people. But I guess getting involved with opportunities and kind of pushing back what they may think

is an obstacle for them, they kind of used that to be more outgoing and open

Our career goals will be to work in the corporate aspect of the fashion industry

So right now we are getting experience in retail and then moving up the ladder

And then like our blog, hoping that would show more of like up in the industry

To me, I feel like fashion is a creative outlet. It's what people see

It's how like people perceive you at first. People are not used to seeing someone who is albino

And when they see them, it's kind of like, why does this person look like that

Why is their hair so light? Why is her skin so light? I feel like it kind of pushes them forward

They don't use their albinoism as a setback. Like, okay, I may have this condition, but I have a talent that is very much needed

And if I'm not here, you know, I can't leave my mark on this earth. We're starting with our Instagram page and getting our followers and showing them a little

bit of our style and our confidence and just embracing our beauty more every single day

Because at the end of the day, there's not one type of beauty. I like the hair

We want to show people that when you dress, you can be confident

Wear whatever makes you feel good to conquer your day. Gold hair, cream skin, that's why they call me Mr. Hershey's cookies and cream

Albinism is a recessive condition. So you can only have it if both parents are carriers or have albinism

And then there's a 25% chance that your child will have the condition

It's basically just an absence of pigment. See, I've got like, I don't class it as blonde hair

This is gold. Two-year-old Leo was born with albinism, a condition which affects the production of melanin in the body

This results in less or no pigment in the body's skin, hair and eyes

I think when I was younger, I used to say, oh, I wish I didn't have it

just because it would have made a lot of things easier when I was growing up if I didn't have albinism

Yeah, that's me. I used to love fire engines. I couldn't just walk to the shop without literally getting into a fight

Like, yeah, every single day I would get into a fight. We were the first black family on my street

And then on top of that, three of us had albinism. Leo's brother and sister were also born with albinism

My dad just gave me this full album of a lot of the newspapers we used to be in back in the day

I didn't even know he had this. Yeah, we were in a lot of magazines and a lot of shows back in the day

These names are rude. I understand it because I guess that's what it looks like in a sense

but it's just an ignorant way of putting things. Because we aren't white

My foster was born in 1992. So then it was like one in five million

So it's very, very rare to have a child with albinism. So I was told I couldn't have more, but I did

I was so isolated because nobody around me knows what to do

So it's very challenging for us as parents that we have these children

and nobody knows what to do to help them. You know, there's all kinds of things that people say that are cruel

But, you know, you just need to shrug it off and move on

Because if you don't, you get yourself into a depression. I know they peed on him because of his albinism

Because knowing that we are black and his wife, children are very cruel. It really is. It's organised chaos. That's what it is

You know what's so funny? They used to say, why are you trying to be black? and then they would say, why are you trying to be white

Sometimes it's a bit annoying because you just can't be invisible. Like, there's no way you can go and just walk

without someone looking at you or staring at you. At the same time, it's nice

Like, you can't be invisible. Growing up with such unique looks, it wasn't long before Leo was spotted

I think I was always confident growing up because of my parents, especially my mum

Yeah, that's really good. Exactly. Can you do a couple where you are kind of maybe straightening your..

Yeah, exactly. That kind of stuff. Modeling industry, people want to see more different people in the industry

But also, there's many, many, many, many, many brands brands that just like the generic beautiful looking people And I don look like that I look different So it always going to be holding you back as well as pushing you forward Through his modelling Leo has become a source of support for other people with albinism

Oh yeah, we're just going to go and have a conversation with one of the boys that

I see sometimes and his parents. Hello! Hello! Hey! How are you doing, man

You good? Good. How are you, Leo? I'm good. Good to see you. Good to see you

I've got a lot to tell you. They stand around. What's been going on? Yeah

They ask a lot of questions at school. Ask, why you're white

If you're already getting 100%, then you can't get 200%. As long as you're getting 100%, then that's fine

I'll put you 100% into it. You're getting 100%. Nearly. There we go

80, 89%. Oh, that's very good. So, at times they don't want to play with him

They said, we don't want to play with you. So it's been very challenging for us

Matthew has been a boy that wants to go to school, but at times he came home and he said he doesn't like going to school

So it's very depressing for us as a parent. There was one time I never talked to anyone

Yeah, that's how I got bronze. Never talked to anyone? Yeah. Oh, you mean when the teacher's talking

No, the whole day. You didn't talk to anyone the whole day? Yeah

It does change significantly since we've met Leo. If you want to do this, you just have to let it grow out and keep combing it

Then I have to not cut my hair for a year. OK

He is just a normal child. He just needs a little bit of accommodation

Matio is always asking, when is Uncle Leo coming? When do I want to speak to Uncle Leo

What am I doing now? Oh, OK. Oh, no. What did I do? I didn't even do anything yet

No, no, you're sheriff. It chooses automatically. Wow. But because I've actually gone through it myself

I know exactly what someone would need. I need a chair. It's like it's my mission, it's my purpose

to make sure other people know this and just help as many people as I can

Neo's helping children with albinism is a breath of fresh air because now my job is done

Who's that? He's glowing. Do I hear him? is beautiful because they're a good role model for them

See? Yeah. Same in the colours. I just want them to know that they're beautiful

through and through, that's it. And they are different, but just embrace it

Thank you so much, Lio. Any time, any time, you really know

Thank you so much. We've been pillar support. Thank you so much

Of course, any time. Thank you, Duncan Leo. Bye. Bye. I just want to make sure

that any child with Abundism or adult or anyone with it just knows that

it's okay and that they beautiful and I want to reach as many people as I can with that message Albinism is a genetic condition

which is passed down by both of the parents to the child with albinism

Albinism causes me to have less pigment so I do not have colour in my hair and my skin

but most importantly albinism is an eye problem. I cannot see depth. I am sensitive to light

I have nystagmus, wobbly eyes, and I see approximately 8 to 10 percent

Persons with albinism also have a higher chance of getting skin cancer

I was born in China, in Xuchang. At that time in China, there was a one-child policy

And because I'm a person with albinism, I was abandoned. because in China some people believe that albinism brings bad luck to their families

Dealing with being abandoned is of course very hard. You do not know where you came from, you do not know what your real name is

When your birthday is, you get an estimation of what your birthday is

and you get a name given by the orphanage. It's very hard, but it strengthens me in getting more life experience

Because my parents did this, they gave me strength. They gave me an opportunity to live in a country that is accepting persons with albinism

I think every teenager or every kid struggles sometimes with their identity

For me, it was figuring out how a person with albinism of Asian descent looks like

It was also important to stay in contact with that part of my roots

From the start that Shwellie was with us, it was important for her to find out who she really is and to become herself

So we found that you're actually really good at sports and that you really enjoyed it

I think that helped you a lot to also find your own identity and things that you like doing

I adopted Shwellie in 2007 when Shwellie was three years old. I adopted her from China. So when I received the proposal of Shua Li, I was only told that

she had albinism. I wasn't told whether it would be a boy or a girl. They never tell you that

And then I had two days to decide on whether I could raise a child with albinism. I didn't know

much, to be honest, about what albinism exactly was. So I really needed to look into that and teach

myself a bit more. So my mother helps me to accept everyone from a young age. She educated me to see

the positive and the beauty in people. And you can also see that when the light's very bright

that you close your eyes. But when it's darker in the room, you open your eyes. And then I have

beautiful sapphires. This is my first photo shoot. That's really amazing. I never want to

to be a model. I did not grow up in that world. I never searched for some recognition

On TV there was not a lot of persons with a disability

When I was 12 years old I did an interview in a big Dutch newspaper and after that people started to ask me questions Do you want to model So I joined a special agency for persons with a disability so that

I can also represent other persons who have a disability who are searching for that recognition

To be honest, I did not know what vote was. I thought, okay, good, lovely newspaper or

thing, I did not know what it was, but then people told me, oh, focus is actually quite

amazing. And I was like, oh, okay, well, great. Thank you. Everyone is unique and everyone

must play a part also in the media and also outside the media. You should not underestimate

people because of their body image, or you should not exclude persons because of their

body image. Exclusion is painful. Beauty to me is very relative. I think beauty is

more on the inside. It's very cliche but I really believe that beauty is on the

inside, about accepting each other, about no wars, about peace, freedom, equality

for everyone. I think that's the beauty and I don't think the beauty you

can find in magazines. Today I'm celebrating Albinism Awareness Day with my mother and with the Global Albinism Alliance

and with the UN Independent Expert on Albinism. The Director General of UNESCO saw an article of me in the BBC

and then the Director General decides to designate me as UNESCO Goodwill Ambassador

for the fight against racism and discrimination. Well, we're almost there at the event. How do you feel about it

I feel very excited. It's an honor. It's a big responsibility. Ready? Yes

I can tell you what Albinism is today, but I can also show you a video

what Albinism is and how young people stand up for their human rights

because I think it's important that we show how young persons stand up for their human rights

Persons with albinism are discriminated against because of their disability and not because of their ethnicity

Thank you very much for you all for coming to this important event

I feel pretty excited. The event went very good. Beauty is to me more on the inside that you are a kind person to everyone and that you

respect everyone's disability or disadvantage. My advice to everyone who struggles with their image, know that you are unique and that everyone

should accept you. Just show yourself to the world. I'm Shrelly, I have albinism and I'm beautiful