Explore the touching story of Sienna and Sierra, twin sisters whose lives diverged due to Sienna's health challenges and dwarfism.
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Sometimes when we go out in the public, people would think she's my mom and not my twin
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When we go to the bar, people think I'm eight, even though I'm 23
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First off, I didn't even realize that I was having twins until about six weeks before
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they were born. They said, well, you're having twins, but you need to quickly get over that because
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we need to talk about baby B. They knew that she had dandy walker in utero, so they could see that she was missing a portion
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of her brain, and then they could see that she was a lot smaller as well
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Sienna stayed in the NICU for 108 days, and then she went into the hospital a lot over
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the next several years of her life. It was a long fight to find out what kind of dwarfism she had or that she had dwarfism
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in general. She did have a hole in her heart, and they thought perhaps that was why she was so small
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And then they gave her a feeding tube in her stomach because they thought maybe she wasn't
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eating enough, and so it wasn't until she was about six, right
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I think. Six or seven, yeah. That we discovered that she had dwarfism
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It was more or less like a relief because now that we know what it is, we know what
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we need to do in order to better her life. Sienna is a spitfire
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Yeah, I always say I'm like a Scyther or a Chihuahua, but personally, I'm like a Wartwiler
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For me, the emotional side of things was a little challenging because Sienna would, having
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an identical twin who is, you know, average height, she would see what she was missing
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So she could see what her life would have been like because she would say, you know
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why is Sierra getting to live the life I want to live? It's affected our relationship in the sense that we have to be very communicative and
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we have to be very, really, we can't be jealous of anything because we do have very different lives
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And we have different experiences. Yeah, very different experiences. We're on a different road path
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It's neat to, you know, from a dad's standpoint to see that they are twins and that they have
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such a tight relationship and yet they are still really so different, not just because
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of their height
#Genetic Disorders
#Family
#Parenting


