My Surgery Cured Me - Then I Became Paralyzed | BORN DIFFERENT
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May 15, 2025
My Surgery Cured Me - Then I Became Paralyzed | BORN DIFFERENT
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I was cured and paralyzed by the same surgery because I had an allergic reaction to the
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anesthesia. At first I didn't want to believe it. It was like there's no way this could be
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happening. I was going in to get something fixed and I come out and I've lost so much
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Doctors told me I would never walk again but I know I'm going to prove them wrong
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Today my friend Enrique is coming over and I'm going to try and break my record for standing
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time. I'm nervous to see what I can do but this is the next step towards walking again
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Three, two, one. This is my formula. I have this condition called gastroparesis which makes me unable to really
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digest food. So this is a feeding tube and the tube goes into my small intestine
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because I was paralyzed before getting diagnosed with this I was already like
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more used to that routine and so this has just been added on to it
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I wake up an hour earlier now just with all my other medical stuff too
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Tell us a little about the heart symptoms you started experiencing when you were younger
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When I was 15, my heart rate got to 225 laying down, and my whole body was just feeling so weird
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They did an EKG, and they found something wrong with my heart and diagnosed me with Wolf-Parkinson-White syndrome
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So it was basically an issue with the electrical system in your heart. It's episodes of really rapid heart rate, and a normal heart beats like this, and mine was beating like this, kind of all over the place
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A few years after my diagnosis, I was going back to boarding school and I really wasn't
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feeling good and I knew an episode was coming. I woke up in the back of the airplane getting CPR and oxygen
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I was terrified. I was rushed to the hospital and I just remember like the beeping was nonstop The surgery I had what they did was they had like wires and they went in through my neck and like my groin
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I had like an extra pathway in my heart and they kind of just like got rid of it
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The surgery cured my heart. I don't have wolf-fricots and white anymore
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When I woke up from surgery, I realized something was wrong. My legs were in excruciating pain
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and within the span of three days, I was paralyzed from the waist down
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Basically what happened while I was in surgery, I had an allergic reaction to the anesthesia
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and it caused my brain to disconnect with the pathways in my legs
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I think hearing that news at first, I didn't want to believe it
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I was like, there's no way this could be happening. I was going in to get something fixed and I come out and I've lost so much
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I can't move my legs. I'm in pain 24-7. And I think hearing that was just like, I'm not going to let that happen
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I'm going to walk again. So this is my standing frame. I use this every day and basically this gets me into a standing position
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So I started going to this paralysis gym and they have machines there and one was called an exoskeleton
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and with the exoskeleton it's basically this like robot that kind of like walks for you
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Here are some videos of me in the exoskeleton machine. Once I had more core strength, I was able to start using that and honestly it was the best feeling in the world
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I wasn't doing it on my own and the machine was doing it, but I was still getting that walking movement
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So I started this GoFundMe to help me get the tools I need to walk again and support myself
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I'm going to be using the money for an exoskeleton and then hand controls for a car
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The exoskeleton is so important because that gets my legs in the walking motion Some say with that that I be walking and then others have just said you not gonna walk again When they said that I was like that not true I know I gonna walk
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again I know I can do this and I'm gonna prove them wrong. Let's do some standing
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I was like you know what I'm gonna just start standing and maybe post some
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videos about it and see where it goes and then I started getting views on it
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and encouragement and that really helped me a lot. I put a lot of energy into my social media accounts
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I post a lot on there on my recovery and journey and walking again
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When I was at the gym they had this walker with actually a piece of wood that blocked
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so I was able to use it and I was like, oh my gosh, I want to make my own and work on standing
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I do like daily kind of things on my Instagram. I just kind of see how long I can to go
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My friend Enrique is coming over and I'm going to try and break my record for standing time. Hi
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How have you been? I'm good, how are you? Good, good. Just been, yeah, going all over the place
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Been in Seattle for a few days. So I'm trying to set a new standing record
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Would you be down to film it? Yeah, of course. We can definitely give it a go. My current record is four minutes
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I am hoping to break it and do five minutes. I think it will be challenging, but I think I'll be able to do it
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All right, let me know when you're ready. I'm ready. Three, two, one
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All right, and we're up. I met Enrique through Instagram. He slid into my DMs and was like, hey, I'm also from Washington
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I was like, oh my gosh. And yeah, we started talking. All right, we're at 25 seconds
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I saw she was playing for the Kraken sled hockey team. and I thought that was super cool and interesting
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And I went to a few practices with her and we've just kind of been friends since
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We are coming up on the two minute mark. Just kind of seeing the strength that she has
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to keep pushing forward and just live her life regardless of any situation that been thrown at her definitely is inspiring You doing so good Bella
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Three, two, one, five minutes. Oh my gosh. Today Bella set out to break her record with standing. She absolutely crushed it
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How does that make you feel? Tired. Tired. Very tired. I can't believe I did it
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I'm very proud of myself. There's nothing holding her back from walking again
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Let's go. Oh, yes. Let's go. For so long, I had such black and white thinking and just like, oh, I'm never going to get better
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And then I was like, I only get this life once. Why do I want to live it
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Just thinking like, I'm never going to walk again when I could get up and try
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Three years ago, if I saw where I was today, I would not believe it
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I have come so far. I did not think I would be able to stand five minutes
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on my walker. Bella's done an amazing job overcoming just every circumstance life has thrown at her
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She finds a way to make it work, I look forward to seeing the progress she makes going forward
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If anyone watching this is going through what I'm going through, just remember, even on the hard days, look for the light and that it does get better
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You only get this life once and it's precious. It may seem like times are so hard and you just want to give up and you don't see a point. Just got to keep going
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You decide how you want to see a situation and move forward
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I know I'll walk again
#Neurological Conditions