Still loving My Life

This song tells the story of someone who has walked through time—who is currently dyiing through mistakes by the NHS. Through loss, change, and quiet battles—yet chooses not regret, but acceptance. It’s not about a perfect life, but a lived life. Every scar becomes a memory, every tear a lesson. In the end, what remains is peace. And a simple, powerful truth: “I still love my life.”Not every life is perfect…but every life can still be loved 🤍" This is my latest song and video which is written for a very courageous beautiful soul who is facing a life with Gastroparesis. Her slow death is being caused by the malnutrition from the Gastroparesis. Ems weighs the same as your average seven-year-old and is five stone. A Go Fund Me has been set up to help this extremely courageous, proud and wonderful human. https://gofund.me/8bd7a2967 Emilie also has had a blood clotting disorder for over 20 years lupus antiphospholipid syndrome and has been injecting and taking blood thinner for 17 years. She now has to pass blood thinner through her tube and inject blood thinner. This has enabled her to have children and has kept it in remission. However, the line caused a clot in her lung so the TPN was pulled and she was categorically told that she could not ever be released into the community with TPN due to the risk of a clot because she was already on the maximum dose of blood thinner available and still got one. Her only option is to have Iv fluids which help keep her hydrated as she isn’t able to get this hydration solely from her tube feeding and she obviously cannot eat or drink more than half a cup of warm liquid each day. Iv Pabrinex which would help her brain from being damaged and IV lipids which would mean having a mini bag of TPN over 1-4 hours via a normal cannula and then having that cannula removed meaning the risk of a blood clot is extremely low. The HUGE curveball is the NHS won’t offer lipids this way. The palliative care team are meant to be booking her into the same day Emergancy care unit. (Sdec) for fluids and essential vitamins to make her comfortable and slow down her organ failure. However a doctor Nathan at the West Herts palliative care team refused this treatment as she wasn’t within weeks of death and the GP surgery (the Village surgery in Harpenden) are not fighting her corner for palliative care to pick up her day admission to Sdec at all. It'sunbelievable that someone who has paid heavily into the tax system and is a born british citizen in 2026 can be left to starve to death and not have access to … basic fluids. Em can have it privately and has done so at the intravenous drip centre in Berkhampstead under Dr. Kerry however this costs £675 for one infusion that ideally she would have daily and that is financially completely out of the question for her. The only hope now is that Emilie can go to Thailand and have treatment under the Bangkok gastroenterology centre of excellence, and have fluids lipids and vitamins daily with them, via a cannula over a four hour period costing “just” £92 a day. We are hoping to raise enough money by January if not sooner to get her there. We are using your donations to get Emilie a drip in this country when she is absolutely “on the floor” and saving the rest so that she can go out to Thailand and receive this treatment and help pay for living expenses as she would not be able to work The idea is that she would do 60 days in Thailand and then come home and work so that she could continue to help pay for her home as normal, and then she would do another 60 days with the hope that she would be around six stone five and her body would stop eating her own organs. It won’t save her life, but it could prolong it for as long as four years meaning she will get to see her youngest daughter to go to prom which is Emilies aim and focal point. Any donations you give are greatly appreciated ,the quicker she gets out there the longer she will live and stop her organs failing.