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Dysautonomia: The Invisible Illness That Ruined My Life
May 2, 2024
www.dysautonomiasupport.com This film has won these film festivals Festival Notification Date Statuses Mei International Film Festival May 30, 2024 Mokkho International Film Festival Jun 4, 2024 Hollywood Blvd. Film May 31, 2024 Magic Silver Screen May 31, 2024 Medusa Film Festival
View Video Transcript
0:05
as you can see as I suffer with dis
0:09
autonomia you know couple nights ago I
0:11
fell busted my eye open on a chair uh
0:15
last night I fell face first into the
0:18
floor uh cut my nose there and of course
0:23
you know the inside of my nose you know
0:24
just bled
0:26
profusely um but
0:30
you know what if that's all this
0:32
autonomia has to offer so be it because
0:36
I've done worse than this when I was in
0:37
a professional wrestling ring and that's
0:41
why I proot am
0:44
continuing to post these motivational
0:49
videos because it's just a roadblock
0:52
it's just a roadblock it didn't stop me
0:54
I got up and moved around I went back to
0:57
the bathroom several times during the
0:58
night it's I walked under my own power
1:03
and it's not going to stop me you know
1:06
and I want to say that you know once
1:08
I've started doing these videos I've had
1:10
a couple uh disautonomia patients reach
1:14
out to me and talk to me and we're
1:16
sharing our
1:17
experiences and you know in the process
1:20
we're we're helping each other because
1:22
you know their symptoms aren't my
1:24
symptoms and my symptoms aren't their
1:26
symptoms and you know of course we
1:28
discuss you know various doctors we've
1:30
been to we discuss various treatments uh
1:33
you know I mean I'm not a doctor I can
1:35
only tell you what's wored for me um and
1:38
of course they're not doctors they can
1:40
only tell me what's worked for them but
1:42
the thing is that's why I say reach out
1:45
to
1:46
me because uh you know this autonomous
1:51
support group that I've
1:53
started it's going to benefit everybody
1:58
and once again like I said I'm I'm not
2:00
looking to be paid to talk to you I'm
2:04
willing to do this for free uh my wife
2:08
Christie um one of the people that have
2:11
contacted me is a
2:12
caregiver uh so christe's going to reach
2:15
out to her because you know with me
2:17
being a patient you know I don't really
2:19
understand the caregiving side as much
2:22
as Christy does and you know my lovely
2:27
wife Christy is going to try to assist
2:30
caregivers um because this is something
2:34
that you know we're dealing with on a
2:36
daily basis now I by no means you know
2:39
like I said you know I'm showing you my
2:41
face is you I I don't have this under
2:43
control um you know I I feel like I've
2:46
got a good teams of doctors that have
2:47
helped me you know in a lot of cases in
2:50
a lot of ways
2:53
and that's you know and and that's all I
2:56
can ask for but in the meantime you know
2:59
like I said you know I I I you know I
3:01
was a professional wrestling was my
3:04
Mainline career for you know long
3:07
periods of time I mean I've done other
3:08
types of Combat Sports but you know you
3:13
maybe I can't do that again but the fact
3:15
that the matter is you know now I'm
3:17
starting to act in you know smaller
3:19
Indie movies and I'm enjoying that and
3:23
you know dis aomy is not going to stand
3:25
in my way it's not going to stop me and
3:29
that's what I want this autonomia
3:32
patients to understand and now yes I
3:35
understand this autonomia can become
3:37
completely debilitating to some people
3:39
and you know they can't do anything I
3:42
get that and you know maybe I'm headed
3:45
there some point in my life but I'm not
3:48
there
3:49
yet um you know I'll keep it PG-13 I
3:53
won't say what exactly what Richard
3:55
prior said when he over produced on
3:57
cocaine but you when he came out out he
4:00
said I ain't dead yet mfer and you know
4:03
that's kind of where I'm at I'm not dead
4:06
yet and
4:08
until this autonomia puts me
4:12
down and like I said in the previous
4:14
video for it to put me down is going to
4:17
be one hell of a fight just because I
4:20
refuse to sit down uh May 11th I'll be
4:25
in Richmond Virginia at the Virginia
4:28
Comic Con
4:30
um the hours of that ComicCon u i mean
4:33
VIPs get in at 10:30 uh but everybody
4:36
else gets in 11 to four I will be there
4:40
I will have pamphlets and you know
4:43
things to hand out you know talking
4:45
about this
4:46
autonomia
4:47
and as I'm saying I want people to learn
4:50
about it because this autonomia is the
4:52
most common disease that most people
4:54
have never heard of and most doctors
4:57
just do not know how to prescribe it uh
5:02
to diagnose it and then once they do you
5:05
know if they do they don't know how to
5:06
treat it so I mean you've got to go to
5:10
specialist um you know I was officially
5:13
diagnosed uh with the specific type of
5:16
this autonomy I have and everything I
5:18
had to go to John Hopkins in
5:20
Virginia um fortunately I'm in the
5:22
Raleigh area now and I've got some
5:24
doctors and stuff that you know
5:26
understand it and know about it and I've
5:29
got different treatment options
5:30
available to
5:32
me um you know some of some of which are
5:36
kind of out of the box in a little
5:38
controversial um but you know the ones
5:41
that I've done that are out of the box
5:42
of controversial have actually benefited
5:45
me now you know I can't tell you to do
5:48
it because you know everybody's
5:50
different you know what works for me may
5:52
not work for you but the problem the
5:55
thing is reach out to
5:57
me um we have a website this autonomus
6:03
support.com uh and if you look at and if
6:06
you click the link you know this
6:07
autonomia support group that's going to
6:10
take you to our Facebook
6:12
page um and from there you know you can
6:15
private message me um if you're a
6:18
disautonomia patient I recommend that
6:21
you you know um that you uh contact me
6:25
um because you know like I was telling
6:28
uh this one young lady I was talking
6:29
about talking to this morning uh the
6:32
suffering from disautonomia you know
6:34
it's and we're sharing our experiences
6:36
cuz I told her what to happened to me
6:37
last night and everything and you know
6:40
and it's one of those things that you
6:42
know yes I can help you because I
6:44
understand what you're going through but
6:46
at the same time you're helping me
6:48
because you're letting me get you know
6:50
my frustrations out you're letting me
6:53
tell you what I'm going through I mean
6:55
it it benefits both of us um you know
6:58
and then I had another person reach out
7:00
to me that is a
7:02
caregiver uh my wife's going to reach
7:04
out to her um because you know my wife's
7:07
a caregiver my wife understands you know
7:10
she's gone through the
7:12
frustration uh the anger you know the
7:14
other things because you know when this
7:16
aromia first
7:18
starts um it's such a silent disease and
7:21
what I mean by silent disease is I'm
7:24
feeling you know miserable inside but as
7:28
far as looking at me I
7:30
I look like I'm fine look like I'm
7:33
normal and you know that's the thing you
7:36
got to realize people just don't
7:39
know what you're going
7:41
through uh you know my wife you know I
7:44
mean you like I said we don't always
7:46
have it under control I mean but at the
7:48
same time talking to somebody that is
7:50
going through the same thing you are
7:53
will help you and once again
7:56
disautonomia support.com
8:00
and if you click on the dis autonomous
8:02
support group that'll take you to our
8:04
Facebook group where I'm easily
8:07
accessible and you know the you I'm not
8:10
going to mention the names of the people
8:12
I'm talking to because you know I
8:14
understand HIPPA laws and understand
8:16
confidentiality so I mean unless they
8:19
choose to share you know I'm not going
8:21
to mention their name um and it's just
8:25
you know it is what it is
8:28
and help people I mean that's that's
8:31
what it comes down to help people you
8:33
know like I said I was a professional
8:36
wrestler which is you know entertainment
8:39
you know I'm I'm an actor I'm an
8:42
Entertainer I'm a singer I'm an
8:45
Entertainer so it's time for me to
8:50
use my talents to help people as opposed
8:56
to using it for self-gratification and
8:59
and this is just what you know it is
9:02
what it is if I can help you great if I
9:05
can't help you hopefully I can steer you
9:07
in the right direction to get help and
9:10
vice versa um because you know we both
9:13
need it um because you know I'm going
9:15
through this just as much as you are and
9:18
you know once again on the caregiver
9:21
side of things you know my wife you know
9:24
she may not be fighting the physical
9:25
battle but she's also going through the
9:28
emotional stress she's also going
9:30
through the you know the worry the
9:33
concern you know cuz when you I busted
9:36
my nose open last night you know that
9:38
didn't bleed a lot but the blood pouring
9:40
out of my nose you know she had to come
9:44
help me and uh you know help me get up
9:47
because IID passed completely out and
9:50
you know then you know we had to get uh
9:53
the bleeding stopped and you know get me
9:54
cleaned up and get me back into bed
9:56
because you know I couldn't get up and
9:58
walk
10:00
but in closing like I said dis
10:02
autonomous
10:06
support.com please visit it please reach
10:09
out and and you I mean I'll talk to you
10:13
anytime um you know but like I said I'm
10:15
a patient so you know I end up taking
10:18
naps and stuff at weird times of the day
10:19
but thing is I will help you as much as
10:24
possible and you know once again I said
10:27
May 11th uh be in Richmond Virginia at
10:30
the Virginia Comic
10:32
Con and you know I I urge you to stop
10:37
by um if you're disautonomia patient I
10:40
would love to talk to you and I would
10:41
love to give you some
10:43
literature um if you're not a patient
10:45
and you're just interested because maybe
10:47
you know somebody that's uh displaying
10:50
symptoms because one of the things on my
10:52
pamphlet is you know it shows a lot of
10:56
symptoms and you know that's that's the
10:58
thing just aom is so often
11:02
misdiagnosed um or you know doctors that
11:04
don't know anything about it you know
11:06
tell you you're suffering from anxiety
11:08
and send you home and you know I look at
11:12
it this
11:14
way I was a fighter my entire life I
11:17
mean mix martial arts fighter in high
11:20
school uh Olympic style wrestler in high
11:22
school professional wrestler I did
11:25
dabble and mixed martial arts a little
11:26
bit you know so I was given a fighting
11:28
spirit well I think it's time the
11:30
medical community started to learn about
11:33
this disease and you know being I have
11:36
such a fighting Spirit medical community
11:38
medic medical community welcome to my
11:41
world because this disease is going to
11:44
start being talked about more it's going
11:46
to start being diagnosed more and it
11:49
will be treated better and that's
11:51
something that people can take to the
11:53
bank because if it's the last thing I do
11:55
this autonomia is going to become
11:57
mainstream and and like I said reach out
12:01
to me I look forward to hearing from you
12:04
I hope I can help you and in the mean
12:07
time have a great day and stay safe
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