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Dysautonomia Recovery: Leaving the Hospital!
Jun 19, 2024
www.dysautonomiasupport.com
View Video Transcript
0:01
sitting in the hospital in uh Raleigh
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North Carolina uh Duke Hospital uh just
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had my pinic out on Monday um you I'm
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posting this to the disoma groups uh for
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for this reason um that's what I had is
0:17
normally a you know it was a
0:30
monitor things like my blood pressure
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which you know as you know this
0:33
autonomia pots patients know just
0:35
fluctuates up and down at will so they
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wanted to monitor it just to make sure
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there was no you know um interactions
0:41
and all that with
0:43
anesthesia um you know and yesterday
0:45
just you know benett was a little up and
0:48
down you know we we stayed one extra day
0:50
just to you know just to be play it safe
0:53
rather than sorry I'm you know so I'm
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not upset about that I me of course I'd
0:57
much rather be home in my own bed but
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now I'm getting as soon as I make this
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video I'm about to pack up and go get my
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clothes on and and I'm going home and
1:05
getting in my bed but um I just want to
1:07
let you know from day one of the surgery
1:10
soon as they brought me upstairs I got
1:12
up and walked I went to the bathroom on
1:14
my own um so I mean it's just keep
1:18
pushing keep pushing keep pushing you
1:20
know I I was talking to a young lady the
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other night that contacted me through
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our disautonomia support group uh once
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again this autonomus support.com and if
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you click on the this autonomous support
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group that'll take you to my Facebook
1:32
page where you can reach out to me
1:34
personally and you know that's what I
1:36
told her I said you just got to learn
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your
1:38
limitations um and you know she asked me
1:41
how I learn limitations with the books
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or videos I read and I said you I don't
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know that I can you know I mean I'm I'm
1:47
part of that old school generation you
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know like with workouts no pain no gain
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type thing so I you know yeah I tend to
1:53
push myself a little bit too far but I
1:55
said really you know it really is just
1:57
trial and error you know push yourself
1:59
since you start to feel bad stop you
2:01
know just just see how far you can go
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you know me you know I'm the idiot
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that's you know start to feel bad I'm
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going to keep pushing anyway but I mean
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don't do that don't do that soon as you
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start to feel bad stop and you know
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that's how I learned my limitations it
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was just trial and error I got up and
2:18
tried you know all right I can do that
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much all right now next time I tried
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I'll see if I can do
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more I mean that's all it is it's just
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it's just trial and error learn your
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limitations you know with me I can't
2:30
stand heat you put me in heat I mean
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that's a limitation I can't do it I just
2:35
can't do it I mean 70° heat especially
2:39
in the humid area I live and that's the
2:41
key to it the humid area where I live
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because I've been to some dry drier
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temperatures and drier places and I can
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stand much higher temperatures um so I
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mean that's the thing but but I mean
2:51
even with that learn your limitations
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you know or disautonomia has made you
2:55
more sensitive to cold you know learn
2:57
your limitations it's all you know it's
2:59
it's all just like with regular life it
3:01
is all about the balance um it's just
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you have to figure out more balance than
3:07
the average person so um but once
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again you know SED me get me in the
3:14
hospital for a couple days but it hasn't
3:16
beaten me and that's just it it never
3:18
will beat me because you know nothing
3:21
can beat you unless you let it so that's
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what I'm saying keep up to good work
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people you know keep following my videos
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and you know I'm play time to get out
3:30
and do some live speaking here in the
3:32
very near future thank you
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