0:04
disautonomia understanding and managing
0:06
a complex condition disoma is a term
0:09
that encompasses a variety of disorders
0:11
affecting the autonomic nervous system
0:13
which controls involuntary bodily
0:15
functions such as heart rate blood
0:17
pressure digestion and temperature
0:19
regulation for those living with
0:21
disautonomia managing this often
0:23
misunderstood condition can be a daily
0:25
battle however with the right knowledge
0:27
support and strategies individuals can
0:30
find ways to cope and
0:34
Thrive what is disautonomia the
0:37
autonomic nervous system is divided into
0:39
three main components the sympathetic
0:41
nervous system responsible for the fight
0:43
ORF flight response the parasympathetic
0:45
nervous system involved in rest and
0:47
digest and the anic nervous system which
0:50
governs gastrointestinal function disoma
0:53
occurs when these systems fail to
0:55
communicate properly resulting in a
0:57
range of symptoms that can vary widely
1:03
person common symptoms symptoms of
1:06
disautonomia can include fatigue which
1:08
is chronic tiredness that can severely
1:10
impact daily activities dizziness and
1:12
fainting especially upon standing due to
1:15
blood pressure regulation issues heart
1:17
rate irregularities such as palpitations
1:19
or erasing heart even at rest
1:22
gastrointestinal problems like bloating
1:24
constipation or diarrhea temperature
1:26
regulation issues feeling excessively
1:29
hot or cold and brain fog which is
1:31
difficulty concentrating or cognitive
1:33
impairment these symptoms can fluctuate
1:35
in severity making daily life
1:37
unpredictable and often
1:42
challenging understanding the types of
1:44
disoma there are various forms of disoma
1:47
including postural orthostatic tardia
1:49
syndrome or pots characterized by a
1:52
significant increase in heart rate when
1:54
transitioning from lying down to
1:55
standing neurocardiogenic Syncopy or NCS
1:59
a common cause of fainting related to
2:01
sudden drops in heart rate and blood
2:02
pressure and multiple system atrophy or
2:05
MSA a rare Progressive disorder that can
2:08
affect movement balance and autonomic
2:10
functions each type may require a
2:12
different approach to management
2:13
underlining the importance of a
2:15
personalized treatment
2:19
plan strategies for managing disoma
2:22
living with disoma requires a
2:24
multifaceted approach here are some
2:26
strategies that can help
2:31
stay hydrated hydration is crucial for
2:33
maintaining blood volume and circulation
2:35
many individuals with disautonomia find
2:38
that increasing fluid intake
2:39
particularly electrolyte-rich drinks
2:45
symptoms compression garments wearing
2:48
compression socks or abdominal binders
2:49
can improve blood circulation and reduce
2:52
symptoms of dizziness and fainting these
2:54
garments help prevent blood from pooling
2:55
in the lower extremities when standing
3:01
eating smaller more frequent meals can
3:03
help stabilize blood sugar levels and
3:05
prevent postmeal blood pressure drops
3:07
some individuals also benefit from
3:09
increasing salt intake but this should
3:11
always be discussed with a healthc care
3:16
provider though it may seem
3:18
counterintuitive regular gentle exercise
3:20
can improve symptoms over time
3:22
activities like swimming recumbent
3:24
biking or yoga can be particularly
3:26
beneficial working with a physical
3:28
therapist who understand understands
3:30
disautonomia can provide tailored
3:35
plans understanding your limits and
3:37
pacing yourself is essential break tasks
3:40
into smaller manageable chunks and allow
3:42
for rest periods to prevent
3:47
overexertion the emotional toll of
3:49
living with disautonomia can be
3:51
significant connecting with support
3:53
groups whether in person or online can
3:56
provide much needed camaraderie and
3:58
understanding educ ating friends and
4:00
family about the condition can also
4:07
environment if you suspect you may have
4:09
da autonomia or are struggling with
4:11
symptoms it's vital to consult with a
4:13
healthc care professional a thorough
4:16
evaluation by a specialist can lead to
4:18
an accurate diagnosis and an effective
4:20
management plan tailored to your
4:25
needs battling disautonomia is
4:28
undoubtedly challenging but with the
4:30
right tools and support individuals can
4:32
lead fulfilling lives awareness and
4:35
education about this condition are
4:37
crucial in fostering understanding and
4:39
empathy as we continue to share our
4:41
stories and strategies we can help
4:43
others navigate their Journeys and
4:45
advocate for better recognition of dice
4:47
autonomia in the medical community
4:49
Remember You are not alone in this fight
4:52
and every small victory counts